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19th Orphan Drugs and Rare Diseases Global Congress 2023 Europe

Collaborations to Accelerate Rare Disease Drug Development and Access

Monday 3rd - Tuesday 4th April 2023

KEY INDUSTRY EXPERT SPEAKERS

David Pearce

President of Innovation, Research, & World Clinic

Sanford Health

Eric Crombez, M.D.

Chief Medical Officer, Gene Therapy and Inborn Errors of Metabolism

Ultragenyx

Pedro Franco

Director for Global Regulatory & Scientific Policy (GRASP)

Merck

Dr. Manolo Bellotto

CSO & General Manager

Gain Therapeutics

Kristin Smedley

CEO

Curing Retinal Blindness Foundation

FLORENCE BARKATS

Chief Commercial Officer

CISIV Ltd

Lara Bloom

President and CEO

The Ehlers-Danlos Society

HANNAH STARK

Operations Lead

NIHR BioResource

RÜDIGER SCHULZE

VP & GM, Germany & Central/Eastern Europe

Ultragenyx

HANNAH HARVEY

Senior Projects Officer

Beacon for Rare Diseases

ROBERT MITCHELL-THAIN

CEO

PBC Foundation

Christian Girard

Co-Founder

OrphaPedia

Sheela Upadhyaya

Chair Elect, Rare Disease Special Interest Group

ISPOR

Nick Sireau PhD

Chair and CEO

AKU Society

Josie Godfrey

Co-Founder and CEO

Realise Advocacy, JG Zebra Consulting

Pr Daniel Scherman

Head of Medicine, Life Sciences Division

European Academy of Sciences EURASC

Christine Von Raesfeld

Founder & CEO

People with Empathy

GRAHAM SIDOROWICZ

EVP Commercial

Bionical Emas

Robert Palmer

Head of Value & Access Oncology, APAC, MEA

Novartis

NAOMI LITCHFIELD

Director, Patient Advocacy

Bionical Emas

ANTHONY HALL

Chief Medical Officer

Healx

BOB STEVENS

Group CEO

MPS Society

DR PETER LANYON

Rare Diseases Clinical Lead, National Disease Registration Service

NHS England

NICOLA GILLOTT

Head of Expanded Access

Amryt Pharma

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