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Speakers

21st Orphan Drugs and Rare Diseases Global Congress 2024 Europe

Collaborations to Accelerate Rare Disease Drug Development and Access

Thursday 11th - Friday 12th April 2024

KEY INDUSTRY EXPERT SPEAKERS

David Pearce

President of Innovation, Research, & World Clinic

Sanford Health

Anne-Sophie Chalandon

Head of Global Rare Diseases and CGT Policy

Sanofi

Pedro Franco

Director for Global Regulatory & Scientific Policy (GRASP)

Merck

Amanda Bok

Chief Strategy Officer

The Synergist

Kristin Smedley

CEO

Curing Retinal Blindness Foundation

Arti Patel

Genomics Associate, Great Ormond Street Hospital, Trustee

Treacher Collins

Lara Bloom

President and CEO

The Ehlers-Danlos Society

Alexander Natz

Secretary General

EUCOPE

RÜDIGER SCHULZE

VP & GM, Germany & Central/Eastern Europe

Ultragenyx

Nigel Nicholls

General Manager UK/Nordics & Baltics

Egetis Therapeutics AB

Hayley Chapman

Senior Program Director

The Synergist

HANNAH HARVEY

Senior Projects Officer

Beacon for Rare Diseases

Christine Von Raesfeld

Founder & CEO

People with Empathy

Sheela Upadhyaya

Chair Elect, Rare Disease Special Interest Group

ISPOR

Josie Godfrey

Co-Founder and CEO

Realise Advocacy, JG Zebra Consulting

Nick Sireau

Chair & CEO

AKU Society

Nick Sireau PhD

Chair and CEO

AKU Society

Available Shortly

Coming Soon!

Available Shortly

Robert Palmer

Head of Value & Access Oncology, APAC, MEA

Novartis

PR DANIEL SCHERMAN

Head of Medicine, Life Sciences Division

European Academy of Sciences EURASC

ANTHONY HALL

Chief Medical Officer

Healx

BOB STEVENS

Group CEO

MPS Society

DR PETER LANYON

Rare Diseases Clinical Lead, National Disease Registration Service

NHS England

Available shortly

Coming Soon

Available shortly

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