Sponsors & Exhibitors | Orphan Drugs and Rare Diseases 2022

Sponsors & Exhibitors

Gold Sponsor

Smartway designs, implements and manages global programs that empower access to innovative therapies.

We partner with pharma and biotech organizations to deliver customized programs that transform lives. These partnerships have made us a leader in the provision of Expanded Access, Early Access, Compassionate Use and Named Patient Programs across 98 countries. Over the last 20 years, we’ve gained the experience it takes to strategically advice, design, initiate and manage global or regional programs with you.

We provide end-to-end solutions to manage complex EAPs. Whatever your size and scale, we’re dedicated to empowering patient access to the right therapy


Lead Exhibitor

Illingworth Research Group is a provider of patient-centric clinical research solutions. Services are tailored to clinical requirements but can include: mobile research nursing, patient concierge, and medical photography, for example. These services are operational in 45 countries and concentrate on taking the trail to the patient or making trial participation easier and more accessible to patients and their families.

Patient centricity is a vital part of our mission and has been so for 20 years. Our Research Nursing support focuses on bringing the trial to the patient in their home, school, or workplace. This can enhance both patient recruitment and retention. Our medical photography team offers an alternative approach by using imagery and video footage within the clinical trial. Imagery can be used in a range of applications concentrated within but not exclusive to dermatological trials.

Associate Sponsor

Pulse Infoframe Inc (Pulse) believes that collaboration cures disease and Pulse enables such collaboration. A new style of healthcare informatics company, Pulsebuilds and supports global, healthcare ecosystems. Its solution, healthie™, empowers​ ​consortia of pharmaceutical and medical device companies, researchers, clinicians, advocacy groups and patients, by aggregating information from a variety of sources and then, delivering key healthcare insights – real-time — derived from these data. For patients with rare diseases, Pulse’sglobal coverage is critical. Already great strides have been made in characterizing rare diseases using Pulse’s global and national registries. These insights help professionals to advance medical research, focus clinical trial recruitment, assist advocacy groups in their dealings with policymakers and provide real-world evidence. Please visit pulseinfoframe.com

Associate Sponsor

OPEN Health brings together deep scientific knowledge, global understanding, and broad specialist expertise to support our clients in improving health outcomes and patient wellbeing. Our global team of 750+ experts — many with PhD or PharmD degrees — work strategically alongside our client partners in medical affairs, health economics and outcomes research (HEOR), market access, and commercial teams across a wide range of therapy areas. The traits that distinguish us and allow us to be leaders in our field include deep scientific knowledge and global understanding, which together create innovative, patient-centric solutions. We have a broad range of healthcare specialist expertise across many Centers of Excellence, enabling us to support our clients through all phases of the product life cycle. And we are united as one flexible organization, harnessing the power of the collective to solve complex challenges.  

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