Josie Godfrey


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Josie is the founding Director of JG Zebra Consulting which provides independent consultancy services with a focus on market access strategy, government and public affairs and patient and stakeholder engagement. Her current projects include leading Duchenne UK’s Hercules project, and international multi-stakeholder collaboration to develop support tools for Health Technology Assessments for new treatments for Duchenne Muscular Dystrophy.
Josie is also a trustee at Climb – the patient organisation for Inherited metabolic Disorders in the UK. Josie has extensive experience in rare diseases having led the establishment of the Highly Specialised Technologies programme at NICE, the National Institute for Health and Care Excellence in the UK which carries out Health Technology Assessments of treatments for very rare diseases. This work included the introduction of a process for Managed Access Agreements to facilitate access to these treatments. At NICE Josie also led the Topic Selection process which determined which products would undergo Technology Appraisals or Highly Specialised Technology evaluations.
Prior to joining NICE, Josie was Head of Policy at the National Specialised Commissioning Team and led work to establish AGNSS – the UK’s Advisory Group for National Specialised Services. She was responsible for initiating, designing, creating and setting up the national programme for the evaluation of funding for services and treatments for very rare diseases, which was developed and delivered collaboration with over 80 stakeholders. Josie led work on strategy, communications and Patient and Public Engagement which included the delivery of the first patient survey for national services.
More recently Josie was the global lead for policy and public affairs at Swedish Orphan Biovitrum (Sobi) working to ensure consistent and effective engagement with key stakeholders across the business and supporting the effective inclusion of market access strategy in early development programmes.
Josie has also worked in health policy and implementation in national and local government.