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Speakers

21st Orphan Drugs and Rare Diseases Global Congress 2024 Europe

Innovative programmes to optimize access in a global healthcare market

Thursday 11th - Friday 12th April 2024

KEY INDUSTRY EXPERT SPEAKERS

David Pearce

President of Innovation, Research, & World Clinic

Sanford Health

Anne-Sophie Chalandon

Head of Global Rare Diseases and CGT Policy

Sanofi

Pedro Franco

Director for Global Regulatory & Scientific Policy (GRASP)

Merck

Amanda Bok

Chief Strategy Officer

The Synergist

OWEN MARKS

Principal, OMGEN, Head of Rare Diseases and Diversity and Inclusion Co-Chair

Pfizer

Arti Patel

Genomics Associate, Great Ormond Street Hospital, Trustee

Treacher Collins

MANUELA MARONATI

Head of Rare Disease Europe

UCB

Alexander Natz

Secretary General

EUCOPE

RÜDIGER SCHULZE

VP & GM, Germany & Central/Eastern Europe

Ultragenyx

Nigel Nicholls

General Manager UK/Nordics & Baltics

Egetis Therapeutics AB

NICHOLAS BROOKE

Founder & Executive Director

Synergist

Nick Sireau

Chair & CEO

AKU Society

KERRY LEESON-BEEVERS

Chief Executive

Alström Syndrome UK

Sheela Upadhyaya

Chair Elect, Rare Disease Special Interest Group

ISPOR

Josie Godfrey

Co-Founder and CEO

Realise Advocacy, JG Zebra Consulting

DR USMAN KHAN

Chair

Motor Neurone Disease (MND) Association

BOB STEVENS

Group CEO

MPS Society

ROHAN SIMON

Associate Director - Business Development

Insights Research Organization & Solutions

MELANIE DIXON

Trustee

Cure DHDDS

DR. RON JORTNER

Founder/CEO

Aspire Biosciences

ANTHONY HALL

Chief Medical Officer

Healx

Kristin Smedley

CEO

Curing Retinal Blindness Foundation

Hayley Chapman

Senior Program Director

The Synergist

Lara Bloom

President and CEO

The Ehlers-Danlos Society

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