Previous Participants

Who Attends The Orphan Drugs Global Congress

Company Name Job title
3D Medicines Director of Public Relations and Strategy
3D MEDICINES CHINA Chief Executive Officer
Accelovance Inc Senior Project Manager
Accelovance Inc VP Clinical Operations
Actelion Pharmaceuticals Switzerland VP – Head of Global Clinical Science and Epidemiology
AKU Society Chairman and CEO
AlepSyr Biotech Consultancy Consultant
Alexion Pharma International Director Search and Evaluation
Alexion Pharmaceuticals Switzerland Associate Director Regulatory Affairs
Algi Pharma AS Executive Chairman
Algi Pharma AS CEO
AlgiPharma AS Chairman of the BoD
Alkaptonuria Society (AKU) UK Head of Projects
Almac Group Senior Business Support Manager
Almac Group Head of Business Development (Europe)
Almac Group Senior Marketing Associate
ALPE Foundation Scientific advisor and international communications
Amicus Therapeutics General Manager Europe
Arab Drug Store Co Business Development Director
Armetheon Inc Director Biotrials
Armetheon INC USA President
ARMETHEON INC USA President & Chief Operating Officer
ASD Healthcare AmerisourceBergen VP Business Development
Association of the British Pharmaceutical Executive Director Research: Medical and Innovation
Astellas Pharma Inc Research Fellow Drug Repurposing
AT Society CEO
Ataxia Research Project Manager
Ataxia Research Officer
Ataxia Cymru – Wales Chairman
BAXALTA Austria VP – Global Clinical Development
Bayer Healthcare Vice President – Pulmonary Group
Bayer Healthcare Pharmaceuticals Switzerland Head of Pulmonology & Anti – Infection
Biocodex VP Business Development
Biogen Switzerland Senior Director: SMA Lead Europe Plus
Biogen Switzerland Senior Director: SMA Business Operations
Biogen Switzerland Associate Director: Market Access
Biogen Switzerland Associate Director: Marketing
Biomarin Europe Ltd Country Director – UK / Ireland
Biomarin Netherlands VP – Early Drug Development
Biomarin UK Director & Country Manager
BioPontis Alliance Chairman of the board
BOEHRINGER INGELHEIM GERMANY Head of Emerging Markets – Corporate Market Access
Bristol – Myers Squibb Director Business Development: Search Evaluation
Caligor Rx Vice President of Marketing & Business Development
Caligor Rx Global Head of Regulatory and Pharmacovigilance
Caligor Rx Global Head of Operations
Caligor RX Vice President: Business Development
Cambridge Rare Disease Network (CRDN) Founder
Cello Health Consulting Senior Vice President: Product & Service Development
Cello Health Consulting Managing Consultant
Centogene AG General Manager Europe
Centogene AG Chief Business Development Officer
Cetogene Senior Director of Quality Management and Regulatory Compliance
Clinerion Ltd Head of Sales
Clinigen Global Access Programs (GAP) Business Development Manager
Clinigen Global Access Programs (GAP) Senior Vice President: Clinigen Global Access Programs
Coté Orphan Consulting LLC Principal / CEO
Coté Orphan Consulting LLC Business Development
Cycle Pharmaceuticals Ltd Regulatory Affairs Manager
Debiopharm International SA Director: Global Market Access
DEBRA Research Lead
Diamond Biopharm Ltd Regulatory Product Development Manager
Dompe Farmaceutica S.P.A. Head of European Biotech
Dompe Farmaceutica S.P.A. Medical Director
Durbin PLC Business Development Assocaite
Durbin PLC Head of Business Development
Durbin PLC Business Development Specialist
Enerca Member Web Manager
Erasmus MC Business Development Manager
Erasmus MC Senior Legal Counsel
Ergomed PLC Head of Business Development
Europabio Officer: Healthcare Biotechnology
EUROPABIO Belgium EuropaBio Healthcare Director
European Huntington's Disease Network Grant Manager
European Network for Rare and Congenital Anaemias (ENERCA) Spain Project Manager
EVER Neuro Pharma GmbH Specialist Rare Diseases Research & Development
FAP disease – Bulgaria Familial Amyloid Polyneuropathy (FAP)
Ferring Pharmaceuticals Denmark Associate VP – Global Regulatory Affairs
Findacure UK Executive Director
Findacure UK Scientific Officer
Findacure: The Fundamental Diseases Partnership Communications & Fundraising Officer
GENETHON FRANCE Head of regulatory Affairs Department
Greek Alliance for Rare Diseases President of the Greek Alliance for Rare Diseases
Greek Alliance for Rare Diseases President
Greenphire Senior Director of European Business Development
Greenphire Director of Business Development
Greenphire Senior Project Manager UK
Grünenthal GmbH VP Portfolio Development R&D
Grunenthal GmbH Clinical Scientific Director
Grünenthal GmbH Head Clinical Operations & Compliance
GSK Global Market Access Director: Gene Therapy
GSK Value Evidence Leader(VEO)
GSK Rare Diseases UK Global Commercial Leader
GSK UK SVP – Rare Diseases
GW Pharmaceuticals COO
GW Pharmaceuticals Director of Global Marketing
HCD Economics Ltd Director
HCD Economics Ltd CEO
Hoffmann – La Roche Senior Regulatory Program Manager
Idis Managed Access/Clinigen Group Business Development
Idis Pharma Global Business Development Executive
INC Reaserch Director: Business Development
INC Reaserch Executive Director: Clinical Development| Cardiovascular and Endocrinology Business Unit
INC Research Director: Global business development
INC Research Senior Director: Global business development
INC Research Director business development
INC Research Sr. Project Manager
Independent Pharmaceutical Physician Independent Pharmaceutical Physician
Inserm France / National French Network for Rare Diseases of the Skin (FIMARAD) PR
INSERM FRANCE Emeritus Research Director
INSERM FRANCE Emeritus Research Director
INSTITUTE OF CHILD HEALTH – U.C.L UK Professor of Paediatrics & Immunology
IPSEN Market Access Director
Justpharmareports Global Pharmaceutical Business Analyst
JustPharmareports Global Pharmaceutical Business Analyst and Consultant
JustPharmareports Child Development Manager for Asian Family Liaison Officer
Kedrion Biopharma Corporate Product Development Director
Lincoln Medical Ltd General Manager
Mapi Senior Director: Late Phase Solutions
Mapi Group Executive Director – Global Strategic Marketing
MAPI Group Vice president: Regulatory Servics
MAPI Group Senior Director: Patient – Centered Outcomes
MAPI Group Executive Director: Global Patients Insights and Engagement
MAPI Group Chief Scientific Officer
MAPI Group Associate Scientific Director: Real World Strategy & Analytics – France
MAPI Group Marketing Coordinator & Internal Communications
Mapi Group CEO
MAPI Group UK Director
Medac GmbH Health Care Environment Manager EU Plus
Medac GmbH Medical and Scientific Marketing Director
MEDExpansion Founder & CEO
Ministry of Health and Social Development of the Republic of Kazakhstan Head of Department
Ministry of Health and Social Development of the Republic of Kazakhstan Manager
Ministry of Health and Social Development of the Republic of Kazakhstan Head of Department
Ministry of Health and Social Development of the Republic of Kazakhstan Head of the Center
MPS Society ndependent Commissioninbg Expert
MPS SOCIETY UK Chief Executive
MultiPharma Global Operations
MultiPharma Chief Executive Officer
MultiPharma Business Development Manager
National Institue for Health Research (NIHR) INVOLVE UK National Director for Patients and the Public in Research & Chair
NATIONAL INSTITUTE FOR HEALTH AND CARE EXCELLENCE (NICE) UK Associate Director – Highly Specialised Technologies
National Institutes of Biomedical Innovation Health & Nutrition Program Officer
NHS England UK Public Health Adviser
NOVARTIS UK Head of External Affairs
NOVO NORDISK DENMARK Global Regulatory Intelligence Director – Regulatory Policies & Intelligence
NPS Pharma now part of Shire Director: Market Access UK & Ireland
Ohara Pharmaceuticals Japan Director
Ono Pharma UK Department Manager
ONXEO R & D Director
Orphan Trust Japan Co Ltd Chief Executive Officer
ORPHANET UK Information Scientist ORPHANET UK Information Scientist
ORPHAZYME Denmark Chief Medical Officer
Oxford PharmaGenesis Ltd Communications Director
Paracelsus Medical University Hospital Salzburg Doctor
Pfizer France Medical Director
Pfizer Inc Executive Director and Global Head – External R & D Innovation – Rare Diseases Worldwide Reasearch & Development
Pharmaceutical Technology / Global Data Freelance Journalist
PPI Healthcare Consulting Managing Director
PPI Healthcare Consulting Access of Health Technologies: Board Director
Premier Research Business Development Director
Proceutica Founder & Director
Proceutica General Manager
PSI CRO Director of Business Development
PSR Group BD Manager
PTC Therapeutics VP Marketing and Patient Advocacy
Rare Biotech Chief Executive Officer
Rarebase Founder and Director
Raredis Bulgaria Chairman
Recipharm AB Director Business Management UK
Recipharm AB Business Development Manager
Recipharm AB UK Associate Director of Business Management
Roboleo & Co Director
Roboleo & Co artner
Roche Innovation Center Lead Scientist
Roche Products Therapeutic area lead
Roche Products Regulatory Affairs Global Regulatory Leader
Roche Switzerland Global Head of Oeprations Management for Neuroscience – Ophthlmology and Rare Diseases (NORD)
Royal Holloway University of London Research Officer and Project Manage
ROYAL HOLLOWAY UNIVERSITY OF LONDON Research and Business Development Manager
ROYAL HOLLOWAY UNIVERSITY OF LONDON Chair of Molecular Cell Biology:School of Biological Sciences
SERENDEX Pharmaceuticals Clinical Operations Manager
SERENDEX Pharmaceuticals Regulatory Affairs Manager
Shionogi Ltd Professional / Consulting
Shire Regional Clinical Operations Team Lead
Shire Regional Clinical Operations Director
Shire Associate Director Supply Chain Distribution
Shire International GmbH Global Marketing Lead – MPS II
Shire International GmbH Vice President
Shire Pharmaceuticals Ltd Business Unit Head
Shire Pharmaceuticals Ltd Senior Brand Manager – Rare Disease
Shire Pharmaceuticals Switzerland Director – Global Market Acess
Shire UK National Market Access Manager
Shire UK & Ireland General Manager
Sigma – Tau Rare Disease Ltd Head of Marketing
Sigma – Tau Rare Disease Ltd Globhal Head of Business Development: General Manager UK: Ireland and Nordics
Silence Therapeutics Executive Director
SmartAnalyst VP & Managing Director
Stepstone Pharma Business Development
STRAMMER International Director Life Sciences
Synteract HCR Senior Director: Business Development
T & E Consulting and Training Director
The Gauchers Association Chief Executive
The Ultra Rare Disease Disorders & Disabilities Foundation CEO
The Ultra Rare Disease Disorders & Disabilities Foundation Director
UCB Associate Director
Ultragenyx Pharmaceutical Inc Senior Director: Regulatory Affairs
University Scientist Associate Professor
University of Wolverhampton Lecturer in Molecular Biotechnology
URDDAD-FOUNDATION – The Ultra Rare Disease Disorders And Disabilities Foundation Founder and CEO
URDDAD-FOUNDATION – The Ultra Rare Disease Disorders And Disabilities Foundation Founder Finance Director
UZ Leuven Head of the Metabolic Center
Valid Insight Managing Director
Valid Insight Senior Advisor
Vifor Pharma Ltd Head Commercial Development Europe
XOMA (USA) LLC VP Business Development